a word from our ceo
If you’re reading this, the chances are that you or someone you love has been, or are being, affected by the horrors of an eating disorder. I want to thank you and pay tribute to your dedication to helping Beat help others.
2023 continued to be a challenging year. Charities across the spectrum have struggled, several have disappeared. I'm sure you've been finding it harder financially too.
But you’ve not forgotten that Beat needs you, and you’ve helped us continue to deliver our vital support.
Demand for eating disorder support and services remains high but funds have reduced and the NHS continues to struggle to meet demand. Your donations and fundraising are more important than ever, keeping our life changing support services running and reaching people who need our help.
We’ve prioritised our services that have the greatest impact and restructured our Helpline to meet demand at peak times ensuring that we are there when people need us most.
You’ve helped us help thousands of people right across the UK, and we’ve kept the spotlight on eating disorders in the media, the Government and the NHS.
We’ve continued to improve health professionals’ understanding of eating disorders by creating training programmes on behalf of Health Education England, and CPD accredited professional workshops by experts to explore key issues including Type 1 diabetes, exercise, diversity, and ARFID.
We've piloted our new casework service, Amplify, which helps those experiencing bad decisions about their care to challenge them. During the pilot, every single person we supported was able to overturn their decision to get the care and support they need.
We’ve also helped improve national policy, putting the voice of people with eating disorders at the heart of decision making. This will have a lasting impact for everyone with an eating disorder.
Looking forward, we will continue changing lives, by offering compassionate support when people need it most, and using our voice and influence to tackle inequalities and drive change.
Your help will remain vital. I hope you’ll read this report and see the impact you’ve had, and that it will inspire you to continue to support us as we strive towards our goal of an end to the pain and suffering of eating disorders.
Andrew Radford, CEO.
OUR YEAR IN NUMBERS
OUR SERVICES HELPED PEOPLE 70,396 TIMES
96% OF HELPLINE CALLERS WOULD RECOMMEND BEAT TO A FRIEND
99% OF HELPLINE CALLERS SAID THEY FELT LISTENED TO
1.3M PEOPLE ACCESSED OUR EATING DISORDER WEB PAGES
OUR WORK WAS MENTIONED OVER 3,500 TIMES IN THE MEDIA
1,091 INCREDIBLE FUNDRAISERS RAISED £761,873
AND IN TOTAL YOU DONATED AN AMAZING £1,145,355 TO SUPPORT OUR VITAL WORK
We provided life changing information and support
Our Helpline provides supportive and non-judgemental help for anyone affected by an eating disorder. We were there for people when they needed us, whether they reached out through web chats, social media, online support groups, email or spoke to our trained telephone advisors.
We were able to help people 48,775 times though our Helpline services last year. We answered over 8,000 phone calls, over 6,000 emails and a staggering 24,000 webchats, helping people find answers, options and hope.
Thank you so much for your help. Calling today has made me feel like I have opened up a new door."
The chat rooms are such a lifeline and help for me. Sometimes knowing there is a group to attend is what gets me through the day. Thank you so much”
Eating disorders don’t discriminate and everyone affected deserves support. Last year our website helped 1.3 million visitors to access information themselves and take the first step to accessing support.
Our information resources were downloaded 72,000 times from our website, and 91,000 people used HelpFinder, our online directory of eating disorder services, to find expertise and support near them.
We helped 249 people take the first step to beating Binge Eating Disorder with our guided self-help programme Momentum.
Advocating for better treatment decisions
For far too long, people have been denied eating disorder treatment or information that they need and to which they are entitled. In 2023, our Helpline estimated that 2,909 people needed extra support to challenge and reverse these bad decisions. That’s 7% of all our webchat, email, and phone calls - far too many people not getting the help they need.
Last year, we started to provide additional support so that people can challenge and help clinicians revisit and reverse bad decisions. This starts with equipping the Helpline team with the NHS protocols and directives that dictate what someone with an eating disorder should expect, and providing template letters and guidance so they can ask for a different decision. It can be complicated and sometimes people need more support than the Helpline can give, so we piloted a new service called ‘Amplify’. This allocated a caseworker to guide someone through the process of getting a bad decision replaced with a good one.
Amplify was 100% successful in overturning bad decisions. Unfortunately, we haven’t yet managed to raise the funds needed to make Amplify a permanent part of our Helpline service, but we will continue to try. In the meantime, we are collaborating with a partner to develop an online tool which we hope will navigate the complexities better and guide people to advocate themselves for the treatment that they need.
And we helped those who help
Every day we hear from people doing everything they can to support a loved one with an eating disorder, and often facing loneliness, isolation and misunderstanding. In the last few years, we’ve sadly seen more and more carers reach crisis point. In response, we have increased the range of services we offer to support carers to develop the skills they need to look after their wellbeing and provide the best support they can to their loved ones.
You’ve helped save me and my daughter when she relapsed in lockdown and there were no other services available. When our world was very dark I really had no one who understood other than Beat.”
In November 2023, we were delighted to bring back our Support for the Frontline virtual conference, giving a platform for anyone caring for someone with an eating disorder to come together, make connections and take away practical skills and advice to help support their loved one. We welcomed 472 delegates who joined panels, workshops and listened to experts share their knowledge and experience.
“Thank you so much for an amazing excellent event. It helps to keep me pushing forward in supporting our loved one.”
In the last year we’ve supported 4,437 carers through our online workshops, and our e-learning platform POD, which also offers an online community for carers. We delivered over 2,000 support sessions for carers, through our training programmes and workshops.
Harnessing Hope was a light in the dark. Providing us with skills to support our loved one. The leader was knowledgeable and very attentive. Many thanks Beat for your help."
100% of carers on our Raising Resilience training said they would recommend the workshop to someone in a similar situation.
We provided training and support for professionals
We know the sooner someone receives treatment for an eating disorder, the better their chances of a full and fast recovery. That’s why Beat provides training to key professionals to spot the earliest signs and know what to do when they see them, helping more people into recovery, earlier.
In 2023-4 we delivered training sessions to 854 healthcare, school and university professionals.
Our Schools Professionals Online Training (SPOT) e-learning platform has now supported 5,814 professionals in primary and secondary schools and sixth-form colleges across the UK. In March 2024, we delivered our face-to-face schools programme Spotting the Signs for the first time since the Covid-19 pandemic, and work has begun to bring our university professionals training Bridging the Gap back to in-person sessions too.
The SPOT training gave me the information and knowledge to recognise and talk to a student about their eating habits and their relationship with food. This led him to being referred to the eating disorder team at CAMHS and getting a diagnosis. Without the training I wouldn’t have been able to notice that.”
To add to our online training sessions for healthcare professionals in collaboration with Health Education England and NHS England, we launched comprehensive eating disorder training for professionals working in acute medical settings within the UK.
We also launched Community of Practice sessions covering a range of themes for nursing, GP, or primary care staff who have completed the relevant training, offering a safe, supportive, and dedicated virtual space to meet and consider eating disorders.
We are breaking down misconceptions and raising awareness
In the media
In 2023, we were able to raise our voice even louder on behalf of anyone affected by an eating disorder. Beat appeared over 3,500 times in the media last year and we helped tell your stories and share the incredible efforts of our fundraisers.
We also provided statistical data and guidance on eating disorder insights resulting in 12 national and 2 regional media stories. We’ve helped make sure some of the year’s hit TV programmes show eating disorder storylines responsibly, including Eastenders, Hollyoaks, Everything Now and Heartstopper.
“WE'RE NOT BEING FUSSY” Shining a light on ARFID.
We dedicated Eating Disorders Awareness Week 2024 to ARFID - Avoidant / Restrictive Food Intake Disorder. Raising awareness of this little known and serious health condition.
In 2023, 10% of the calls for help we received were from people affected by ARFID, a seven-fold increase over the past five years.
We worked with people with lived experience to help shape the campaign highlighting that ARFID often gets confused with fussy or picky eating. This can stop people getting diagnosed and finding the help that they need. They wanted people to know that #WeAreNotBeingFussy.
And our campaign raised awareness with:
100,000 VIDEO VIEWS
17,000 ENGAGEMENTS ON SOCIAL MEDIA
977 SUPPORT SESSIONS DELIVERED
800 ARFID WORKSHOP ATTENDEES
556 MENTIONS IN THE MEDIA ACROSS PRINT, ONLINE AND BROADCAST OUTLETS, INCLUDING BBC BREAKFAST, BBC NEWS, GOOD MORNING BRITAIN AND MORNING LIVE
We created new content to bolster our information about ARFID to help our supporters understand this condition and how to seek help and offered extra support through our Helpline and online groups.
We also launched the pilot of Anchor - our new one-to-one support programme, for carers of young people aged 5 to 17 with ARFID.
This (online support) group is so important to me. It's helped me so much to be able to talk to other people who have ARFID and actually understand.”
ARFID workshop
During the week a panel of professionals and experts by experience came together to discuss ARFID treatment pathways, available assessments and interventions, and the potential barriers and opportunities for clinicians and carers.
Over 800 people attended, including people caring for someone with ARFID, healthcare professionals and education professionals.
This event was performed amazingly, a brilliant charity with brilliant speakers! Was very impressed. I will definitely be booking more workshops!” - ARFID workshop attendee.
Leading the conversation
We have been raising awareness and bringing people together across the political spectrum to ensure that fewer people have to wait to get the help they need.
Scottish Parliament debate
The Scottish Parliament marked Eating Disorders Awareness Week (EDAW) 2024 with a debate in which MSPs from different parties sought to raise awareness of ARFID and the need for better support in Scotland. There were contributions from the Minister for Social Care, Mental Wellbeing and Sport and from the opposition’s Spokesperson on Public Health and Women’s Health.
The motion was proposed by Emma Harper MSP, who commended the work of Beat, highlighting our call for the Scottish Government to provide an update on its current work to support all those impacted by an eating disorder, and to protect crucial eating disorder services despite the challenging fiscal landscape.
Raising awareness in the Senedd
The Deputy Minister for Mental Health, Lynne Neagle, attended the Cross Party Group on eating disorders, during Eating Disorders Awareness Week, where she heard from our lived experience volunteers who shared their journeys of recovery from an eating disorder in Wales. We also heard from one of the eating disorder services in Wales which has developed a specialised ARFID service.
During the meeting the Deputy Minister committed to setting up a task and finish group as a priority to look at scaling up ARFID specialist support across the whole of Wales.
Raising awareness in Westminster
Throughout this year we have been meeting with MPs and Peers to raise awareness of eating disorders and the policies we are calling for. We provided the secretariat for the All-Party Parliamentary Group (APPG) on eating disorders, which enables us to work with politicians with a particular interest in eating disorders to achieve our campaigning goals.
Making strides In Northern Ireland
In Northern Ireland, our National Lead took over the role of Chair of the Eating Disorders Forum, an association of regional charities. This has helped to raise our profile and reputation in Northern Ireland and has led to further opportunities, including an invitation to provide secretariat support for a new All Party Group on Eating Disorders.
We have continued to fight for change to ensure that fewer people experience the pain and suffering of an eating disorder.
Greater protection online
The Online Safety Act has become law, meaning that social media platforms should become safer places for people with eating disorders. Thanks to our lobbying, children must be prevented from seeing content that ‘encourages an eating disorder or behaviours associated with an eating disorder’ and larger platforms must give adults the tools to ‘filter’ out this content if they choose to do so.
Initially eating disorders were not subject to the strictest regulation but thanks to our work with politicians, civil servants, Ofcom and other third sector partners it has been included. And, in another win for our lobbying, the final Act included numerous amendments that we had called for, including one which extends the regulation to smaller, high-risk platforms.
Calorie labelling on menus
Our campaign opposing calorie labelling on menus saw big wins. Governments in both Scotland and Wales announced a pause on the introduction of mandatory calorie labelling on menus, until the publication of research from the National Institute for Health and Care Research and Public Health Scotland.
The research from Public Health Scotland has now been published and supports our research highlighting the harm calories on menus would cause, so we are lobbying for the Scottish Government to fully take this into account.
Waiting times for children and young people in England
We undertook research following concerns raised with us by clinicians that some NHS Trusts were submitting misleading data which disguised the length of their waiting lists for children and young people in England. We found that around half of NHS Trusts were either failing to follow the national guidance on how to measure and report waiting times or failing to collect important data.
In several areas it was clear that many young people effectively join a hidden waiting list after their treatment has officially 'started', completely undermining the national waiting times target. After writing to these Trusts, 9 out of 25 agreed to make the changes we requested. We shared our findings and concerns with senior NHS England staff, and they have promised to take action to address the problems we highlighted.
More funding for eating disorder research
We have had great success in our campaign for more funding for eating disorder research. Thanks to our Breaking the Cycle report and campaign, research funders created a funding pot of £4.25 million to strengthen the eating disorder research community so that it can secure more funding in the future. Four research projects were funded, including one to improve how eating disorder data is collected and another that is integrating eating disorders into the ‘Born in Bradford’ study in order to better understand the causes of eating disorders.
In both of these projects, we are leading on co-production, recruiting and supporting experts by experience to share their insights and ensure the research is as impactful as possible, and are members of the advisory board on a third project funded from this pot.
Progress in Wales
We were delighted with the appointment in April 2023 of a new full time Clinical Lead for eating disorders in Wales. We had called for this in our 2022 report “3 Years On”, which examined progress made by the Welsh Government since the 2018 Welsh Eating Disorder Service Review.
Campaigning for intensive outpatient treatment
We want to make sure people with eating disorders get the right level of treatment at the right time. Intensive outpatient care can offer an accessible and early pathway to recovery and reduce the need for inpatient hospital stays, getting people better faster. In 2023, we began work on a new campaign to improve the quality and increase the availability of intensive outpatient care for eating disorders in the UK.
We have been working together to drive change
Scottish Government Partnership
The Scottish Government supported us with a grant of £607,850. As well as funding core services like the Helpline and the POD platform for carers, this made Scotland the only part of the UK where all of our support programmes have been available.
As a result, nearly 550 sufferers and carers have received intensive support, coaching and training. Almost 75% of Scotland’s secondary schools have accessed our eating disorder resources and 150 healthcare professionals have been given training.
We’re delighted to hear that the Scottish Government have now signed up for the same level of funding in the year to come.
I feel a real sense of hope for the first time in years.”
This is my first experience of supporting someone with an eating disorder, so the feeling of loss and isolation was frightening. After reaching out to Beat, I completed my first course and it was really valuable, thank you. It has made a huge difference to our family.’’
Following the National Review of Eating Disorder Services the Scottish Government funded us to organise a Lived Experience Panel. This was a way for people with firsthand experience of recovering from an eating disorder or caring for someone in recovery to have their say on government plans for eating disorder services in the coming years.
We ran three panels and 36 experts by experience were recruited and trained. The panels gave advice on the Scottish Government’s plans for the future of services, had input into NHS online resources to support patients and carers, and made recommendations on a wide range of topics including disparity in care in different parts of Scotland, better training for GPs and greater support for families and loved ones.
When I began my role as Chair of the Scottish Eating Disorders Network it was so helpful to be able to read the summary reports of the Lived Experience Panels facilitated by Beat and I look forward to continuing our work with Beat, through the Network, to seek the views of service users and carers to ensure that services across Scotland are able to deliver improved treatment and care.”
Prof Cathy Richards
Welsh Government Partnership
The Welsh Government supported us with a grant of £119,008. This enabled us to provide support to thousands of sufferers and carers in Wales through our Helpline support channels and through spaces on some of our specialist programmes. These include: Momentum, our guided self-help programme for people with Binge Eating Disorder; Nexus, our telephone coaching service for carers; and SharED, our email befriending service for young people with eating disorders.
[SharEd made] such a huge difference. Just having a person to share things with, without feeling at risk of being judged was so beneficial. I felt less isolated and writing the emails kept me focused on recovery.”
Working with Essex ICB
We have been working in Essex since 2021 in what is an extremely productive and effective partnership for people with eating disorders in that area. Essex ICB have commissioned our services through a multi-year contract, allowing us to really ensure we are providing high quality service to the people of Essex, while also able to take learnings and feedback that impacts our wider national work.
We also held two tailored events for professionals in Essex to raise awareness of eating disorders, highlight the services available for people affected by eating disorders, and provide guidance to professionals who support them across the county.
"This was one of the most useful events that I have ever attended in my career. I came away feeling hopeful for how I can support our young people and their families and very clear on what is available and how to access it. A huge thank you for this opportunity. " - Essex event attendee.
Working closely with school professionals has also been a large part of this partnership. Being able to return to face-to-face workshops within schools in Essex has allowed schools in the area to be a safe space for young people who may be struggling with their eating, and enabled school staff to feel competent and prepared to spot the signs of eating disorders and manage these appropriately.
Not only have Essex commissioned our ongoing work, but they also have supported us in developing the pilot of our Anchor programme, for carers of young people with ARFID. They commissioned 40 pilot places which have now all been filled and are ongoing. Once the pilot is complete, we envisage that this programme will be available for commission nationally.
We couldn’t have done all this without YOU
Last year was an incredibly challenging year, but we are so proud of the impact we’ve had on thousands of people living with an eating disorder and their families and loved ones.
443 volunteers dedicated a massive 21,004 hours of support throughout the year. They answered web chats, guided conversations in online support groups, and shared their personal experiences, helping thousands to get the support they needed.
You also shared your lived experience with us. From helping us to adapt our services to meet demand to helping shape policy and influence media, your real stories have helped us create real change.
You have been supporting our work by running, walking, crafting, baking and cycling to raise an incredible £761,873. We are truly astounded by your creativity, passion and dedication and humbled by your commitment to support people affected by eating disorders.
However you supported us last year... THANK YOU. We wouldn’t be here without you.
Thank you to everyone who’s helping us change lives
- Alice Ellen Cooper Dean Charitable Foundation
- AND Digital
- AWEDSIG (All-Wales Eating Disorder Special Interest Group)
- Catriona Smith
- CHK Foundation
- City Bridge Foundation
- Combined Charities Fund
- Community Foundation for Northern Ireland
- Garfield Weston Foundation
- Goldman Sachs Gives (UK)
- Inner Wheel of Great Britian and Ireland
- Lisa Donnelly Goldman Sachs Gives (UK)
- Mishcon de Reya LLP
- Oak Foundation
- Scottish Government
- Stone Family Foundation
- Susan Hill
- The Aviva Foundation
- The Church of Scotland Guild
- The Eveson Trust
- The John Armitage Charitable Trust
- The National Lottery Community Fund
- The Rayne Foundation
- The Vogelgezang Charitable Trust
- The Welsh Government
- The W M Mann Foundation
And every fundraiser, donor, volunteer, campaigner, and partner who’s supported our mission. Together, we change lives.
So, what comes next?
After your information you provided to me, I have finally got some help...Without your support I could not have got this far with my GP. Thankfully at last I have been diagnosed with an eating disorder and I am getting support after a two year long battle, [I] cannot thank you enough, your support has been amazing and I am proud of what you all do to help. THANK YOU FROM THE BOTTOM OF MY HEART.”
We’ll keep advocating for people with eating disorders, ensuring that decision makers listen to people with lived experience and we’ll campaign for quality, accessible treatment that tackles eating disorders as early as possible.
We’ll work with professionals in healthcare and education to ensure they have all the tools they need to provide fast and effective support for people with eating disorders.
We’ll ensure our influence is felt across all corners of the UK, and we will continue to adapt and improve our services, helping us support more people onto the path of recovery.
We’ll champion our incredible community, sharing your lived experiences, your triumphs and expanding our reach to support everyone affected by eating disorders.
Most importantly, we’ll be the calm, reassuring voice at the end of the line when someone calls in crisis. We’ll be the safe space for the family members heartbroken by this devastating illness taking over their loved one. We’ll be there. And WE’LL CHANGE LIVES.